CTSA Consortium Child Health Oversight Committee - Rare Diseases
Description: |
The Rare Diseases group aims to identify gaps in the systematic study of rare diseases and determine ways in which the CTSA Consortium can help address those gaps. The workgroup will obtain input on pressing rare disease research issues from experts across the CTSA Consortium as well as from federal entities. |
Rare Diseases Participants:
| Co-Chair(s) |
Barry Byrne (Florida) Robert Griggs (Rochester) Peter Merkel (Boston) |
| NIH Coordinator(s) | Mary Purucker (NCRR) |
| Participation | Click to view |
| Previous Meetings (2010) |
January 25, 2010
|
| Previous Meetings (2009) |
November 23, 2009
October 26, 2009 July 27, 2009 June 22, 2009 April 27, 2009 January 26, 2009 |
| Previous Meetings (2008) |
November 24, 2008
October 27, 2008 September 22, 2008 August 25, 2008 June 2, 2008 May 14, 2008 January 28, 2008 |