For The Consortium

CTSA Consortium Child Health Oversight Committee - Rare Diseases

Description:

The Rare Diseases group aims to identify gaps in the systematic study of rare diseases and determine ways in which the CTSA Consortium can help address those gaps. The workgroup will obtain input on pressing rare disease research issues from experts across the CTSA Consortium as well as from federal entities.


Rare Diseases Participants:
Co-Chair(s) Barry J Byrne (Florida)
Robert Griggs (Rochester)
Peter A. Merkel (Boston)
NIH Coordinator(s) Elaine Collier (NCRR)
Mary Purucker (NCRR)
Participation Click to view
Next Workshops

September 21, 2010
8:00 AM – 8:00 PM

Next Meetings September 27, 2010
4:30 PM – 5:30 PM

October 25, 2010
4:30 PM – 5:30 PM

November 22, 2010
4:30 PM – 5:30 PM

December 27, 2010
4:30 PM – 5:30 PM

Previous Meetings
(2010)
August 23, 2010
May 24, 2010
March 22, 2010
February 22, 2010
January 25, 2010
Previous Meetings
(2009)
November 23, 2009
October 26, 2009
July 27, 2009
June 22, 2009
April 27, 2009
January 26, 2009
Previous Meetings
(2008)
November 24, 2008
October 27, 2008
September 22, 2008
August 25, 2008
June 2, 2008
May 14, 2008
January 28, 2008